1 result for (book:deavf1 AND heading:"essay 6 tuesday april 20 1982" AND stemmed:doctor)
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So last night, less than two days after she’d held her last session, I asked Jane for some material about the central theme of her days in the hospital, both from her own viewpoint and that of the doctors who probed, examined, and discussed her and her problems. Some of them talked about her right in front of her as though she weren’t there—and, Jane said, with her hearing still much impaired at that time, she almost felt as though she wasn’t there.
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Several of the brightest young rheumatologists and orthopedic surgeons had my future all mapped out for me, or so it appeared, as they discussed my case. When they spoke to Rob and me I tried to listen, but my hearing was still so poor that it was nearly impossible to make out one full sentence at a time. All the doctors seemed to agree that I had a kind of burned-out case of rheumatoid arthritis, with little active inflammation. But one doctor soberly told me that I’d never walk again, or even put my weight upon my feet again, unless I underwent a series of joint-replacement operations—if, he cautioned, I proved to be a “proper candidate.”
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(Long pause at 9:02.) Being a proper candidate meant getting rid of those bedsores, for one thing, as well as taking extensive physical therapy. As I listened to the doctor talk, poor hearing or no, I could almost feel medical science starting up all of its gears, ready to go to work on my behalf—and I wasn’t ready to make any such decision right then. I wanted to see how my body would react to the synthetic thyroid hormone and to therapy first. I wished to hell I could (underlined) run, I thought, for boy, I’d have run right out of there, fast!
(9:05.) The particular group of young doctors I saw, the specialists, were probably the fanciest-looking dandies that Elmira has known. They were superlative-looking young men, dressed in the latest of fashions, and even in the hospital it was apparent that they were properly clothed in the finest of social mores as well. They were in their collective way like magicians, producing wonders out of the clear air, stunning you with their charming smiles and manners, trying to win you over to some strange cause.
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(A one-minute pause at 9:13, eyes blinking, then closing.) One doctor told me that my body’s mobility would be bound to change for the better as my thyroid gland …
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Actually, I came to realize, Jane was so terrified by the thought of those operations that mentally she shunted aside all such prospects. Only when she was home did she begin to fathom the possible depths of the physical reality she’d created for herself, with my help. To coin a phrase, she was “truly, deeply shocked.” The doctors wanted to literally cut the major joints out of her body! To replace them with metal and plastic joints inserted into the bone ends and cemented in place. Jane cried. Her voice shook. “But in spite of everything, over all those years I never felt sick until I went into the hospital,” she wailed. The glowing reports we heard and read about successful joint-replacement operations meant little to her. “Sure, for one joint, or two, maybe,” I said, then shut up, not wanting to add my own fears to her fears. But four of those operations? And why stop there? If they fixed her knees and hips, what about her shoulders? She couldn’t raise her arms level with them. “Oh, they’d operate on the shoulders, too,” a doctor told me in front of Jane, without inflection, as though we were discussing an inanimate mechanism that needed rebuilding. Six operations, then. But what about my wife’s elbows, and her fingers? Somebody at the hospital —I forget who—told us that joint replacements for the fingers and/or knuckles usually weren’t all that successful: The bones in the hands were pretty small and delicate. But it could well be argued that Jane needed to be able to write with a pen or pencil, to express her basic creativity in that particular elementary fashion, even more than she needed to walk. (It would be great if she could at least use a typewriter!) So there could be eight operations, or ten, or …?
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Short of outright failure, however, some of the articles I’ve collected contain the information that a conventional artificial joint replacement—for a knee, say—usually lasts only from four to seven years before loosening. A most discouraging prospect! What does one do when the insert begins to wobble? None of the doctors we’d talked to had mentioned such a possibility. (One can always claim that being able to walk for even four years is a lot better than not walking at all!) Jane and I also read that through experiments with animals medical designers are working to perfect an artificial knee joint with porous surfaces, to promote better bonding of bone to metal; it could last 15 years or more. Someday, I told Jane, and regardless of whether or not we ever choose to take advantage of any of them, we’ll be questioning orthopedic surgeons very closely about what “surgical procedures” are available.
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Let me quickly add that all of the doctors who examined her advanced their suggestions while trying to be helpful, and in the name of “truth” as they saw it—with individual variations, of course. To us, however, in all but one case their general unconscious biases were negative. The exception was the youngish doctor Jane had referred to at the very end of her last session. As it happened, he was the one who’d had her admitted to the hospital to begin with. He’d offered Jane encouragement as she is, and she had felt an immediate psychic rapport with him. But he was a neurologist, and we saw less and less of him as it was determined that his special skills wouldn’t be of continuing help in Jane’s situation. In the overwhelming medical view, then, as Jane said, the operations were the only way for her to go….